Hospitalizations for Mental Health Issues Were Rising Before Pandemic
Webinars
Recently Released Data
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Four in Ten Families Report Pandemic Negatively Impacted Finances
Latest Data on Child Well-Being During Pandemic
Webinar
Thursday, April 29, 2021, from 1:00 p.m. – 2:30 p.m. (PST)
Learn more about the questionnaire, Family Experiences During the COVID-19 Pandemic. Drs. Robert Sege from the Healthy Outcomes from Positive Experiences (HOPE) Project at Tufts Medical Center and Lori Turk-Bicakci from the KidsData program at PRB will provide an overview of the questionnaire, summarize California and national findings, share where to access California data and national snapshots, and offer highlights from the HOPE perspective. The webinar is hosted by the Essentials for Childhood Initiative. Register here.
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One in Four Caregivers of Special Needs Children Report Physical Discipline in Household
Latest Data on Child Well-Being During Pandemic
Webinar
April Is Child Abuse Prevention Month
Recently Released Data
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Families Report Stress, Positive Experiences During Pandemic
A Special Message to KidsData News Subscribers
Family Experiences During the COVID-19 Pandemic
Children’s Health Resources
Recently Released Data
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A Health Care System that Supports Children with Special Health Care Needs and Their Families
A parent shares an example of a “care map,” which illustrates the complicated web of medical care and coverage, as well as educational and support services needed for children with special health care needs and their families.
In California, 14% of children have a special health care need. Kidsdata released updated data on children with special health care needs that describe their characteristics, access to services, level of insurance coverage, and quality of their care. The data also describe the impact of having a special health care need on children and families.
Guest author, Allison Gray, MA, from the Lucile Packard Foundation for Children’s Health, shares how a more family-centered and coordinated system of health care can ease the family experience.
Core to the Maternal and Child Health Bureau’s definition of children with special health care needs (CSHCN) is the need for care “beyond that required by children generally.” While it is understood that this means more doctor’s appointments, therapies, services, hospitalizations, and potentially a need for additional in-home care for the child, the impact on parents, caregivers, and families often is overlooked. Parents strive to do everything they can to ensure the best care for their child. In addition to day-to-day care, they are faced with navigating a fragmented system, coordinating across multiple providers who do not communicate with one another, and figuring out confusing health insurance policies and payments among other tasks on a long to-do list. Many of the challenges families face are due to shortfalls in our complex health care system.
Some parents reduce work hours in order to manage their child’s care, and in other cases parents leave the workforce entirely. Many families experience financial hardship as a result. Broader implications may include the stalling of careers and an economic impact. The latest data show that 19% of CSHCN in California had family members cut back or stop working because of their children’s health needs in 2016-2019. Anecdotal data suggest that the current public health crisis has resulted in a significant exacerbation of the challenges around employment and caregiving for these families.
Now more than ever, a more family-centered and coordinated system of care is required to ease the burden on families of CSHCN. Best expressed in a Viewpoint on family burden and medical complexity by Meg Comeau of the Center for Innovation in Social Work & Health at the Boston University School of Social Work, a national organization that works to advance the health and well-being of vulnerable populations, “…these burdens are not caused by my child or any of my family members. They are not the direct result of my complex caregiving responsibilities. They are the result of deficits in the systems that surround us; the systems that are supposedly designed to support us.”
Visit the Lucile Packard Foundation for Children’s Health website to learn more about how their program for CSHCN is investing in a more efficient system that ensures high-quality, coordinated, family-centered care that will improve health outcomes for children and enhance quality of life for families.
Resources on Children with Special Health Care Needs
National Care Coordination Standards for Children and Youth with Special Health Care Needs
These Standards help state officials and other stakeholders develop and strengthen high-quality care coordination for children. It includes identifying and assessing needs, engaging families, and building a strong and supportive care coordination workforce.
An Almost Complete List of Services Used by Families and Children with Special Health Care Needs
Children with chronic and complex health conditions and their families require access to a wide array of health care and other services to function optimally. This list can be used for care mapping, care planning, resource database creation, and referral system development.
The Lucile Packard Foundation for Children’s Health continually updates a curated list of COVID-19 Resources for Children with Special Health Care Needs.
Children’s Health Resources
2020-21 California County Scorecard of Children’s Well-Being
Children Now released an interactive tool that delivers data on how kids are doing in each of California’s 58 counties. It tracks 39 key indicators of children’s well-being – over time, by race/ethnicity, and relative to other counties – from prenatal to the transition to adulthood.
Recently Released Data
We recently released data about Children with Special Health Care Needs and Childhood Adversity. See links to the latest here.
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Licensed Child Care Remains Challenging for Many Families
Licensed Family Child Care Homes Offering Evening, Weekend or Overnight Care in California, 2019
Licensed child care continues to be unavailable and unaffordable for many families in California. While nearly 37,000 child care centers and family child care homes were licensed in California offering nearly one million spaces in 2019, caring for children outside the home remained a challenge. For caregivers who work non-traditional hours, the challenge may be even greater.
Among licensed facilities in 2019,
- 2% of child care centers and 41% of family home care offered evening, weekend, and/or overnight care
- 82% of each type of facility offered part-time schedules
- Child care centers cost over $17,000 yearly for full-time infant care and over $12,000 for preschooler care while family home care facilities cost around $11,000 for either age group (in 2018)
Since the pandemic began, child care has been impacted in ways we are only beginning to understand. Based on a study conducted by the California Child Care Resource and Referral Network, 43% of respondents reported in June and July 2020 that their child care was different than what they had been planning to use before the pandemic. Cultivating and expanding a mixed delivery care system that serves all families has only increased in importance through this period.
Webinar
Creating Compelling Messaging with ACEs Data
Date: January 20, 2021, 10:30 AM – 12:00 PM
Host: Essentials for Childhood (EfC) Initiative
Speakers from Berkeley Media Studies Group, ACEs Connection, and kidsdata.org will offer guidance on effectively communicating about adverse childhood experiences. Register here.
Children’s Health Resources
The CDC recently released a report that raises concern for child abuse victims. The report found that during the pandemic the total number of emergency department visits related to child abuse and neglect in the U.S. decreased, but the percentage of such visits resulting in hospitalization increased, compared with 2019.
The Lucile Packard Foundation for Children’s Health continually updates a curated list of COVID-19 Resources for Children with Special Health Care Needs.
Recently Released Data
We recently released data about Early Care and Education. See links to the latest here.
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California Sets Bold Goal to Cut Burden of ACEs in Half Within Next Generation
A new report from the California Office of Surgeon General provides vision and guidance on reducing the impact of adverse childhood experiences (ACEs). Roadmap for Resilience: The California Surgeon General’s Report on Adverse Childhood Experiences, Toxic Stress, and Health covers four areas:
- The science, scope, and impacts of ACEs and toxic stress
- Primary, secondary, and tertiary strategies to prevent harmful exposures, facilitate early detection and intervention, and lessen the severity and progression of resulting diseases or social outcomes
- State tools and strategies to address ACEs and toxic stress including case studies and systems-level implementation considerations
- California’s next steps to advance evidence-based interventions and cross-sector approaches to prevent and mitigate the impacts of ACEs
The report focuses on cross-sector strategies in health care, public health, social services, early childhood, education, and justice. In addition to providing a framework for a shared understanding, language, and vision to align efforts, it also highlights current practices that address ACEs as a public health crisis.
See kidsdata.org’s Childhood Adversity and Resilience topic for data describing the number and types of adverse experiences among children in California.
Webinar
Creating Compelling Messaging with ACEs Data
Date: January 20, 2021, 10:30 AM – 12:00 PM
Host: Essentials for Childhood (EfC) Initiative
Speakers from Berkeley Media Studies Group, ACEs Connection, and kidsdata.org will address the practical application of the report: “Adverse Childhood Experiences Data Report: Behavioral Risk Factor Surveillance System (BRFSS), 2011-2017: An Overview of Adverse Childhood Experiences in California.” Register here.
Recently Released Data
We recently released data about homelessness. Almost 12,000 California youth ages 0 to 24 were homeless on one night in January 2019. See links to the latest here.
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Lucile Packard Foundation Selects PRB as New Home for Kidsdata.org
The Lucile Packard Foundation for Children’s Health announced today that it has selected PRB to be the new home for Kidsdata.org, the leading source for data on the health and well-being of California’s children. Read the announcement.
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Quick Tip: Definition, Source & Notes
Compelling data go beyond the numbers. All 600+ indicators on kidsdata.org include definitions, data sources, and notes to help interpret the data.
Click on the “Definition, Source & Notes” link on any indicator page:
In this section, find a sample sentence that shows how to talk about the data, a link to the data source, and additional information to understand findings.
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Suicidal Ideation and School Connectedness
Suicidal Ideation by High, Medium, and Low Levels of School Connectedness Among California Students, 2017-2019
Youth who feel more connected to school are more likely to have a stronger sense of well-being. Data on suicidal ideation among students before the COVID-19 pandemic suggest a relationship to school connectedness. Among California students in grades 9, 11, and non-traditional programs in 2017-2019, nearly one in ten who felt highly connected to school seriously considered attempting suicide. However, almost three in ten students who felt a low level of school connection considered attempting suicide.
Though research on suicidal ideation since the pandemic began is limited, past research linked social isolation with poor mental health among children and youth. During a time when physical interaction with educators and peers is reduced, child-serving programs become increasingly important as a means to drive social interaction and mental health well-being.
Two bills in the California legislature that, in part, address mental health among children and youth were signed into law in September. Suicide Prevention (AB 2112) establishes the Office of Suicide Prevention within the California Department of Public Health. The office will provide information and technical assistance to statewide and regional partners regarding best practices on suicide prevention policies and programs. The Peer Support Specialist Certification Program Act (SB 803) establishes statewide requirements for counties to use in developing certification programs for peer support specialists. Peer support specialists must self-identify as having lived experience with the process of recovery from a mental illness or substance use disorder. They can play a valuable role in promoting connections and reducing suicide and suicidal ideation.
Children’s Health Resources
Promoting Youth Engagement & Connectedness in a COVID-19 World, an online event facilitated by the Prevention Technology Transfer Center Network, shares participant suggestions for successful strategies to virtually engage youth. Find summary notes among the supplementary materials.
Suicide Prevention in Schools: Strategies for COVID-19 offers a perspective on addressing students’ mental health needs in schools from The Suicide Prevention Resource Center.
The Lucile Packard Foundation for Children’s Health continually updates a curated list of COVID-19 Resources for Children with Special Health Care Needs.
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