Spotlight on Children With Special Needs (Part 1): Family-Centered Care

In a series starting this month, KidsData News is examining data on children with special health care needs (CSHCN) and their families to understand who they are, their strengths, and the challenges they face. We’re analyzing recently released data from a California oversample of the National Survey of Children’s Health and will be publishing an expanded suite of CSHCN indicators and breakdowns. These data will provide the most comprehensive portrait of California CSHCN in a decade. In our first installment, we highlight a new PRB research brief on family-centered health care for CSHCN families.

Family-Centered Care Linked to Better Outcomes for CSHCN, but Families Report Challenges With Providers

When CSHCN receive high-quality, family-centered health care, they enjoy improved care outcomes, including better overall health; better access to coordinated, ongoing, comprehensive health care within a medical home; fewer emergency department visits; and fewer unmet health needs. Putting families at the center of care requires doctors and other providers to spend enough time with the child, listen carefully, show sensitivity to the family’s values and customs, provide the family with specific information they need concerning the child, and help the family feel like a partner in the child’s care.

Receipt of Family-Centered Care Among CSHCN Ages 0 to 17: 2016–2019

Pie charts showing, for California and the United States, among children with special health care needs who had health care visits in the previous year, the share who did and didn’t receive family-centered care; data are three-year estimates for 2016 to 2019.

Many CSHCN families face challenges in accessing family-centered care: In California and across the United States, around 1 in 5 CSHCN with health visits in the previous year did not receive family-centered care, according to 2016–2019 estimates. Research also has pointed to disparities in access to family-centered care for CSHCN based on demographic, socioeconomic, and health characteristics, but these studies have not always controlled for potentially confounding factors. When these factors are controlled for, does receipt of family-centered care for CSHCN families vary consistently by race/ethnicity, parent education, or primary language spoken at home? The results might surprise you. Read more.

We Want to Hear From You

KidsData User Survey 2024

How do you use KidsData data and resources? What could we do differently? We want to hear from you about how we can improve our offerings to better support your efforts on behalf of children and families. Please consider taking 10 minutes to share your thoughts in our user survey. The survey will be open through Friday, March 29.


Ignite the Spark Scholars Program

The Center for Antiracism Research for Health Equity at the University of Minnesota School of Public Health is awarding grants of up to $72,000 to early and mid-career scholars committed to developing novel measures and approaches to studying the impact of structural racism on population health. Up to six pilot studies will be funded. The application period opens Friday, March 1.

Children’s Health Resources

Expanded SNAP Benefits Boosted Food Security During the COVID-19 Emergency

More than 1.8 million children participate in CalFresh, California’s Supplemental Nutrition Assistance Program (SNAP) program. A new PRB research brief highlights a national study that found that households receiving SNAP benefits at the height of the COVID-19 pandemic were more likely to be able to access sufficient and nutritious food and a study from North Carolina that found that SNAP shoppers bought fewer less-healthful food items in the first year of the pandemic.

You Count Data Hub 2024 Update

The California Homeless Youth Project at the California Research Bureau has released new data and features on its You Count Data Hub, California’s first integrative dashboard on youth homelessness. Access the latest data from the California Homeless Data Integration System, California Department of Education, and U.S. Department of Housing and Urban Development. Also, see how California ranks among states on key measures of youth experiencing homelessness and availability of youth-dedicated beds, find a local continuum of care (CoC) homeless assistance program, and more.

Behavioral Health Virtual Services Platform

California’s Children and Youth Behavioral Health Initiative has launched two free behavioral health services apps for families with kids, teens, and young adults ages 0 to 25. BrightLife Kids provides behavioral health coaching for parents, caregivers, and children ages 12 and younger. Soluna offers confidential, one-on-one support for 13- to 25-year-olds.

Recently Released

We recently released data about disconnected youth. See links to the latest here.

Posted by

This entry was posted on Tuesday, February 27th, 2024 at 11:08 am. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

Post a comment/question: