The links below provide wide-ranging data, available largely at the state level, about children with special health care needs (CSHCN). While definitions vary, children with special health care needs are defined for many of the indicators listed below as those who have a chronic physical, developmental, behavioral, or emotional condition and who also experience consequences due to their condition, such as above-routine use of health and related services or limitations in activities compared to other children.
Children with Special Health Care Needs (State-Level Data Only) Prevalence | By Age | By Gender | By Condition By Complexity of Need | By Number of Conditions By Income Level | By Race/Ethnicity | By Poverty and Race/Ethnicity By Type of Insurance
Children with Major Disabilities Regions of 250,000 Residents or More Regions of 20,000 Residents or More
Special Education Enrollment (Data for All Counties) Number | Percent | By Disability | By Race/Ethnicity
Types of Special Needs (State-Level Data Only) By Condition | By Number of Conditions
Asthma Diagnoses | Hospitalization Rate
Cancer Diagnoses | By Age | By Race/Ethnicity | By Type of Cancer Survival Rate by Race/Ethnicity | Survival Rate by Type of Cancer
Special Education Enrollment By Condition
Weight (State-Level Data Only) Overweight or Obese Children, by Special Needs Status
Community-Based Health Services Difficulty Accessing | By Type of Insurance
Early Intervention Services, Receipt of Overall
Needed Five or More Basic or Specialized Health Care Services Overall
Referrals to Specialty Care By Difficulty Getting Referral | By Type of Insurance
Routine Preventive Dental and Medical Care Received By Race/Ethnicity | By Type of Insurance
Special Education Services By Participation in Services
Unmet Health Care Needs Overall | By Income Level | By Complexity of Need
Unmet Mental and Dental Care Needs Mental Health Care Needs | Non-Preventive Dental Care | Preventive Dental Care
Usual Source of Health Care Overall | By Income | By Insurance Status
Youth Who Received Support Services for Transition to Adulthood Overall | By Income | By Type of Insurance
Health Insurance Coverage By Status of Coverage | By Type of Insurance
Adequacy of Health Insurance Coverage Overall | By Special Needs Status | By Income Level | By Type of Insurance
Children with Inconsistent Insurance Coverage Overall
Out-of-Pocket Health Care Expenses By Type of Insurance
Difficulties for CSHCN Bodily Function Difficulties | Emotional/Behavioral Difficulties Severity of Difficulties | Four or More Difficulties, by Type of Insurance
Effect on Daily Activities By Level of Effect
Limitations on Ordinary Activities Overall
Repeating a Grade in School By Special Needs Status | By Complexity of Need
School Days Missed Due to Illness By Number of Days
Families Spending 11+ Hours a Week on Health Care for CSHCN Overall | By Type of Insurance
Impact of Child’s Special Needs on Parental Employment Overall | By Income | By Type of Insurance
Parents Experiencing Stress By Special Needs Status
Care Coordination, Receipt of Overall
Family-Centered Health Care, Access to Overall | By Income Level | By Race/Ethnicity and Primary Language By Type of Insurance
Health Care Met a Minimum Quality Index By Special Needs Status
Medical Home, Access to Overall | By Age | By Income Level | By Race/Ethnicity and Primary Language By Type of Insurance
Parents Who Felt Like Partners in Their Child’s Care Overall | By Type of Insurance
CSHCN: A Profile of Key Issues in CA
Our Foundation’s focus on CSHCN
Report: CA's Service System for CSHCN
Report: Models of Care for CSHCN
Find more articles and resources
Deaths
Hospitalizations
Low Birthweight and Preterm Births
Overweight/Obese Children