The links below provide wide-ranging data, available largely at the state level, about children with special health care needs (CSHCN). While definitions vary, children with special health care needs are defined for many of the indicators listed below as those who have a chronic physical, developmental, behavioral, or emotional condition and who also experience consequences due to their condition, such as above-routine use of health and related services or limitations in activities compared to other children.
Children with Special Health Care Needs (State-Level Data Only) Prevalence | By Age | By Gender | By Condition By Complexity of Need | By Number of Conditions By Income Level | By Race/Ethnicity | By Poverty and Race/Ethnicity By Type of Insurance
Children with Major Disabilities Regions of 65,000 Residents or More Regions of 20,000 Residents or More
Special Education Enrollment (Data for All Counties) Number | By Disability | By Race/Ethnicity Active California Children's Services (CCS) Enrollees, by Age (Data for All Counties) Number | Percent
Types of Special Needs By Condition | By Number of Conditions | Special Education Enrollment, by Condition
Asthma Diagnoses | Hospitalization Rate | Special Health Care Needs, by Condition
Attention Deficit Hyperactivity Disorder (ADHD or ADD) Special Health Care Needs, by Condition
Autism Special Education Enrollment, by Condition | Special Needs, by Condition
Cancer Diagnoses | By Age | By Race/Ethnicity | By Type of Cancer Survival Rate by Race/Ethnicity | Survival Rate by Type of Cancer
Developmental Delays Special Education Enrollment by Condition | Special Needs, by Condition
Mental Health Needs Special Education Enrollment, by Condition | Special Needs, by Condition Depression-Related Feelings, by Grade Level | By Gender and Grade | By Level of Connectedness to School | By Race/Ethnicity
Weight (State-Level Data Only) Overweight or Obese Children, by Special Needs Status
Community-Based Services Difficulty Accessing | By Type of Insurance | By Complexity of Need
Early Intervention Services, Receipt of Overall
Needed Five or More Basic or Specialized Health Care Services Overall
Referrals to Specialty Care Difficulty Getting Referral | By Type of Insurance | By Complexity of Need By Race/Ethnicity
Routine Preventive Medical Care Received Overall | By Insurance Status | By Race/Ethnicity
Special Education Services By Participation in Services
Unmet Health Care Needs Overall | By Income Level
Unmet Mental and Dental Care Needs Mental Health Care Needs | Preventive Dental Care
Usual Source of Health Care Overall | By Income | By Insurance Status
Youth Who Received Support Services for Transition to Adulthood Overall | By Income | By Type of Insurance | By Complexity of Need By Race/Ethnicity
Health Insurance Coverage By Status of Coverage | By Type of Insurance
Adequacy of Health Insurance Coverage Overall | By Special Needs Status | By Income Level | By Type of Insurance
Children with Inconsistent Insurance Coverage Overall
Out-of-Pocket Health Care Expenses By Adequacy of Insurance | By Type of Insurance
Conditions Greatly Affect Child's Daily Activities Overall | By Type of Insurance
Difficulties for CSHCN Four or More Difficulties, by Type of Insurance | Emotional/Behavioral Difficulties
Family Financial Problems Caused by Child's Condition Overall
Family Members Avoiding Changing Jobs Due to Health Insurance Overall | By Type of Insurance
Families Spending 11+ Hours a Week on Health Care for Child Overall | By Type of Insurance | By Race/Ethnicity
Impact of Child’s Special Needs on Parental Employment Overall | By Income | By Type of Insurance | By Complexity of Need By Race/Ethnicity
Overnight Hospital Stays for CSHCN Overall | By Type of Insurance | By Race/Ethnicity
Parents Experiencing Stress By Special Needs Status
Repeating a Grade in School By Special Needs Status | By Complexity of Need
School Days Missed Due to Illness By Number of Days
Care Coordination, Receipt of Overall | By Complexity of Need
Family-Centered Health Care, Access to Overall | By Income Level | By Race/Ethnicity By Type of Insurance | By Complexity of Need
Families Who Feel Engaged in Shared Decision-Making with Providers Overall | By Type of Insurance | By Complexity of Need
Health Care Meets Federal Minimum Quality Standards Overall | By Type of Insurance | By Complexity of Need | By Race/Ethnicity
Medical Home, Access to Overall | By Age | By Income Level By Type of Insurance | By Complexity of Need | By Race/Ethnicity
CSHCN: A Profile of Key Issues in CA (2013)
Our Foundation’s focus on CSHCN
Report: CA's Service System for CSHCN
Report: Models of Care for CSHCN
Find more articles and resources
Deaths
Hospitalizations
Low Birthweight and Preterm Births
Overweight/Obese Children