Lucile Packard Foundation for Children's Health      

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The Lucile Packard Foundation for Children's Health | January 17, 2013

Health Care System for Chronically Ill Children in California Lags Behind Many States, New Study Shows

California lags behind a majority of states when it comes to ensuring that children with special health care needs receive adequate health and social services, according to a study released Jan. 16 by the Lucile Packard Foundation for Children’s Health. The state ranks in the bottom six states on key health indicators such as access to pediatric specialists and coordination of care.

The study, prepared by the Child and Adolescent Health Measurement Initiative at Oregon Health and Science University, analyzes California’s latest data from the National Survey of Children with Special Health Care Needs. See the data >>

Among the Key Findings:

  • California ranks last in the nation on the percentage of children with special health care needs whose families experience shared decision making with health care providers.

Children are considered to have special health care needs if they have a chronic health problem and use more health care services than typical children. These children may have asthma or diabetes, conditions that can be controlled with medication and lifestyle changes, or be dependent on sophisticated medical equipment to get through each day. They account for more than 40 percent of all health care costs among children nationwide, despite making up only about 16 percent of the U.S. child population.

Low-income families, children from certain ethnic/racial groups, and children with the most complex needs usually have the most difficulty accessing medical care and necessary community services.  

See the data >> 

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New study shows health care system for chronically ill children in California lags behind many states. See the report>> Mascots is a program of the Lucile Packard Foundation of Children's Health, which uses data to promote the health and well being of children.
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